Post by News Desk on Feb 8, 2006 17:51:04 GMT -5
National Campaign - Answers to Questions
by John Ernst of FM-CFS Canada
Many thanks to Ken ( Fibrohugs ) for setting up this forum and to everyone who has volunteered. I am the Executive Director of FM-CFS Canada, which has had Lydia Nielson from the National ME/FM Action Network on our Board for the past two years. We are working with about 30 groups from coast-to-coast, each of whom will be assembling some basic resources for the upcoming Mother's Day campaign.
We are working with Tamara Liller of the National Fibromyalgia Partnership in the US who shares many of our goals, and we'll hopefully see our two countries raise the volume at the same time this Spring.
Pat suggested we have a common letter to send out to Mayors, and we agree. We'll post one on our site for you, and post it here too. Our city's Mayor, (Ottawa) recognized it, and it wasn't a big deal for them. They get allot of such requests, and we're working well in advance so we're in good shape. Please send to john at: office@fm-cfs.ca
We're also asking prominent people, community leaders, church leaders, media personalities, business people, hospital directors, etc., to write a simple and brief letter of Moral Support for our cause. We want to show our government leaders and others that we're not alone. We will post a sample request letter on our site. Once we have more than a 100 letters received in Canada, we're going to package them and redistribute them to groups across Canada, to make it easier to ask even more people to write a letter - the ones you didn't think you could ask the first time. We'll assemble all the second wave of letters with the first and reprint them for each region. This can be a valuable resource to have in-hand when asking for help, from sponsors, the media, etc. Please send to john at: office@fm-cfs.ca
We're also working to build a Faces of FM & CFS campaign, much like those shown in the FMAware magazine. We aim to find young and old, male and female, care-giver and physician, personal stories with photos that we can place in a central site. We want to both break the stigma that suggests you're to hide if you're sick, and we want to help the media find their stories by providing them with a great variety to choose from. We're hoping each region can find five varied stories. Please send to john at: office@fm-cfs.ca
Full Story:
www.fmscfs.org/
by John Ernst of FM-CFS Canada
Many thanks to Ken ( Fibrohugs ) for setting up this forum and to everyone who has volunteered. I am the Executive Director of FM-CFS Canada, which has had Lydia Nielson from the National ME/FM Action Network on our Board for the past two years. We are working with about 30 groups from coast-to-coast, each of whom will be assembling some basic resources for the upcoming Mother's Day campaign.
We are working with Tamara Liller of the National Fibromyalgia Partnership in the US who shares many of our goals, and we'll hopefully see our two countries raise the volume at the same time this Spring.
Pat suggested we have a common letter to send out to Mayors, and we agree. We'll post one on our site for you, and post it here too. Our city's Mayor, (Ottawa) recognized it, and it wasn't a big deal for them. They get allot of such requests, and we're working well in advance so we're in good shape. Please send to john at: office@fm-cfs.ca
We're also asking prominent people, community leaders, church leaders, media personalities, business people, hospital directors, etc., to write a simple and brief letter of Moral Support for our cause. We want to show our government leaders and others that we're not alone. We will post a sample request letter on our site. Once we have more than a 100 letters received in Canada, we're going to package them and redistribute them to groups across Canada, to make it easier to ask even more people to write a letter - the ones you didn't think you could ask the first time. We'll assemble all the second wave of letters with the first and reprint them for each region. This can be a valuable resource to have in-hand when asking for help, from sponsors, the media, etc. Please send to john at: office@fm-cfs.ca
We're also working to build a Faces of FM & CFS campaign, much like those shown in the FMAware magazine. We aim to find young and old, male and female, care-giver and physician, personal stories with photos that we can place in a central site. We want to both break the stigma that suggests you're to hide if you're sick, and we want to help the media find their stories by providing them with a great variety to choose from. We're hoping each region can find five varied stories. Please send to john at: office@fm-cfs.ca
Full Story:
www.fmscfs.org/